Weekend Update

Hello all,

Saturday was a bit of a down day with lots of misinformation and miscommunication. Since that about sums up the day, all I will mention is Bill is definitely getting bored which is a good sign.

Today was a much, much better day. Mainly because the room next to Mom finally opened up so Bill was moved into the room to the right of hers. This room has a big glass partition that opens and has a curtain so they were able to see each other for the first time. They waved and called out I love you's and most of the nurses were crying because it was so sweet.

Then Mom was well enough to ask for lipstick, lotion, a mirror and a pretty nightgown. Vanity is a good thing when you are that sick! She had a new cast put on her arm and is much more comfortable. She has a small bug, but they don't think it is enough to require antibiotics. She is doing well on her breathing exercises, hopefully she will be breathing on her own soon.

Bill looks great, but he is definitely bored (completely understandable) so we are bringing both of them books on tape tomorrow. He has lost most of the fuzziness from the medicines and is almost as chatty as Mom. His night nurse said that every time she went into his room, he would say he couldn't sleep and then try to chat her up so she wouldn't leave. Hopefully they will get back on more normal sleep schedules soon.

Our biggest challenge now is trying to get an "care conference" with the attending physician and various specialty docs for both of them. Mainly we want the big picture for both of them so we can try to decipher all the conflicting information we receive. We believe they are getting great care at MCV, but sometimes getting a straight story is next to impossible.

The weekend was a roller coaster, but it ended on a very up note, so we are still very optimistic.